The guilt trap
In my last post, I told about how my
back injury, which eventually ended with me receiving major surgery,
began.
What I want to talk about today is how
I have felt as I have battled my insurance company, Blue Cross of
California in my quest to get the surgery I needed.

For some reason I have felt that it is
my fault. Somehow this fight against an insurance company that
dictates people's health care not according to what they need but its
bottom line, has left me feeling empty and hopeless at times.
If this was a basketball game, Blue
Cross would be spotted 50 points at the start of the game. The odds
have been against me all the way.
Let me explain a few things.
My surgeon (a neurosurgeon) wanted me
to have what they call disc replacement in my lower back. Just like
there are knee and hip replacements, the area between the vertebrae
called the lumbar disc can be replaced. Once the diseased disc is
taken out, the artificial one put in its place acts like a joint. It
seems simple enough but it isn't.
The problem is that the back is
complicated. There are nerves and muscles and the spinal cord
itself. Sometimes back surgery can leave a patient worse off than
before surgery. Hip and knee replacements are commonplace nowadays.
Artificial Disc Replacement (ADR) is newer and the reason why my
surgeon wanted to do it is to avoid the pitfalls of fusion. Namely,
with fusion there is a risk of non fusion, possible pain from using
your own bone, and the big one, adjacent disc disease as the joint
is fused and the load is transferred to adjacent discs, which can
deteriorate and the patient needs more surgery.
My surgeon offered me a surgery with a
quicker recovery, less pain and a better prospect for getting back to
a more normal life.
Now who wouldn't jump at this? Blue
Cross won't because their surgeons, which in my case included a
retired neurosurgeon, believe in out-dated data.
Disc replacement has been performed in
Europe for more than 20 years. Many Americans go to Europe to have
surgeries because it is less expensive and the European surgeons can
do more than one level and have years of experience.
We shouldn't have to go out of our
country to have surgery and people shouldn't be forced into a surgery
they do not want and is not their best option.
The fact is that my particular disc,
the ProDisc, went through years of trial and was approved by the FDA
in August, 2006. Trials for disc replacement have been going on since
1998 in the US.
So when my surgeon and I tried to get
approval for my surgery, originally scheduled for December we were
delayed and finally denied. An appeal to the Department of Managed
Health in Sacramento was denied. One of the three doctors who
reviewed my case even questioned if I was in severe pain.
I finally told my husband that I had to
have the surgery and we might have to pay for it, but I was going to
do everything in my power to get Blue Cross to foot the bill.
Blue Cross actually authorized my
surgery on March 11, 2008. But the insurance company which says it
advocates for its consumers, does not want to pay. So the initial
bill is 137,603.22 . Recently, the hospital reduced the charges, but
it is still more than we can handle.
So you can see where guilt comes in. I
have risked my family's welfare so I could have the surgery that
would give me the best chance of getting back to work as a nurse and
getting back to my life.
- Kim Kutcher RN's blog
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ADR
Hi Kim, thank you for sharing your story. My fiance' is going thru the same thing you went thru. He needs a cervical disk replacement and now we are on the approval/denial/appeal road with United HC. How did your surgery turn out? Good I hope. It's wrong what they do to people who really need help AND are informed enough to decide what KIND of help they want AND deserve!
Kim's horror story
Kim, reading you story made me feel sad for you and ashamed that we have allowed things to progress to this point. It is hard enough being in pain and recovering from illness and disease. To add this additional burden of financial hardship and the emotional battle of fighting to obtain treatment is awful beyond words. My sympathy to you and thank you for your courage, in the midst of your own crisis, to fight to make this right for others.
Your disk replacement
I must talk to you about this. I also need to have my L5 addressed. My neurosurgeon wants to do the Disk Replacement and afer all my research - I also want todo this. My health insurance denied it - said it was "exploratory". I do not want to hav my verterbae fused. It's not natural. And I am very active in sports, exercise etc... The cost is outrageous. I just found you post and I need to ask you all kinds of questions. How did you actually get them to authorize the surgery? I also don't understand...why is their a bill if the authorized the surgery? How are you feeling with it now? Please email me direct so we can coorespond. (Im in Pennsylvania). Thank you so much.
I hope you get this. Thanks...Can't wait to coorespond with you.
DDD
I heard you story on MRA today and it is so upsetting where health care is today! I have a collapsed disc L5-S1 and DDD in the 2 above. For 8.5 years worst in last 2.5 years.I have tried to get help and the Pain clinics say I need surgery and they can not help, yet the Spine Surgeons tell me to go to the Pain clinics? I have not worked for 8.1 years because of pain. I am on disability with Medicare insurance. Now I am told that I have RA with all this back problems I believe that the insurance company's do not help and have a bearing on what Doctors will or will not do?
Psalm 51
10 Create in me a clean heart, O God,
And renew a steadfast spirit within me.
11 Do not cast me away from Your presence
And do not take Your Holy Spirit from me.
12 Restore to me the joy of Your salvation
And sustain me with a willing spirit.
regarding your comment
rossam,
I am sorry you are in so much pain. I can imagine that much pain since I have been there to some extent. I tell people that even as a nurse, I could not relate to how much back pain people could be in. It is a 24/7 type of pain that does not leave your body.
Yeah, I have been through insurance hell. I found some doctors to be very against Artifical Disc Replacement(ADR) and when I found one that was for the treatment, I was stymied by my insurance company and ultimately by the insurance overseer, the Dept. of Managed Health Care in California.
People need to understand that I did not go looking for a spinal surgeon that was specifically doing artificial discs. I was against surgery, but as I found out that I had a painful annular tear in my disc and DDD (degenerative disc disease), I came to realize that this might be the way I needed to go.
I saw an orthopaedic surgeon who wanted to do fusion surgery. He was against ADR and when pressed he eventually told me he didn't do ADR currently and only did them in residency. My pain doctor told me that I was risking the middle of the disc coming out and cutting my aorta and causing my death.
My eventual surgeon told me exactly what was wrong, explained the treatment choices and did the necessary tests to make sure I was a candidate for ADR.
Since I had a painful disc, he told me a more simpler surgery, called a microdisectomy wouldn't work. My options were to do nothing and live on pain pills, have ADR surgery or fusion.
ADR is currently a major surgery and the disc must be implanted from the front. So there is the need of a second surgeon, either a vascular or general surgeon. It has been a tough recovery but I have no regrets.
You can e-mail me at trackgirlnut@yahoo.com, rossam. You can also go to www.adrsupport.org for some help.
I am going to add a new blog today and thanks for listening Tuesday. I hope you find some answers.
Kim